If you’ve ever been the primary caregiver for someone in hospice care, then you know how demanding the job is. While it’s one of the most challenging things you’ll ever do, it’s also one of the most rewarding. In this blog, we’ve compiled six tips to help primary caregivers of hospice patients better support their loved one through their hospice journey. 

Tip #1: Staying organized can help alleviate stress

Staying organized can be easier said than done, but it may help alleviate stress in the long run. When you’re the primary caregiver, you’re expected to keep track of many things, including medications, appointments, paperwork, and more. 

You can find digital and paper planners or calendars that can help you visually track your loved one’s upcoming visits. A file system may help you keep all of your loved ones’ essential documents in the same spot, so you can easily access their information. 

Having a reliable system in place to keep information organized and easily accessible will ensure your loved one’s needs are met without missing any crucial information or appointments. 

Tip #2: Openly communicate with your loved one’s hospice care team

Don’t be afraid to reach out to the hospice team.  Open communication with your loved one’s hospice team will ensure a smooth, seamless experience for everyone involved. Your care team is always available to answer any questions you or your loved one may have about their medications, medical equipment, upcoming appointments, therapy programs, and more. 

As a primary caregiver, you know your loved one the best. If you notice any changes in their conditions or have concerns, you can bring them up to the care team. 

Having open, honest communication ensures that your loved one is receiving the care they deserve and that any questions or concerns you may have are addressed. 

Tip #3: Be patient with yourself and who you’re caring for 

Being a full-time caregiver for someone in hospice can be exhausting, so always remember to be patient with your loved one. Hospice prioritizes its patients’ wishes, so honoring their wishes should come first. Take the time to let them participate in their care and make decisions while they can. If they’re struggling with memory, be patient as they retell stories and ask questions. 

Learning to be a patient caregiver can be challenging, but staying calm and levelheaded can create a comfortable, peaceful environment for your loved one. 

Tip #4: Don’t forget to take care of yourself 

As a caregiver, it can be easy to put yourself on the back burner while caring for your loved one. This job takes a toll on you physically, mentally, emotionally, and even spiritually. Finding ways to alleviate stress and practice self-care can make a big difference. 

Fitting intentional movement, like walking, into your day can help you decompress. Remembering to eat and rest regularly can help you refuel and give you the energy you need to get through the day. If you need to talk to someone, you can speak with a spiritual advisor, seek professional help, or contact someone on the hospice care team. 

Making time for yourself will help you fill your cup so you can be the best caregiver for your loved one. 

Tip #5: Make the most of your time together 

Being present and making the most out of the time you have with your loved one is one of the most important things you can do as a primary caregiver. While it’s easy to get caught up in stressful moments, it’s crucial to remind yourself to take a deep breath and slow down.

Find activities you can do with your loved one, like watching their favorite films, reading their favorite book, or even listening to their favorite music. You may even enjoy doing puzzles, arts and crafts, or reminiscing about fond memories. 

Spending quality time with your loved one can bring peace and comfort while they’re on hospice.

Tip #6: Use the resources you have available to you

Your loved one’s hospice provider has helpful resources to support your hospice journey as a caregiver. Don’t be afraid to ask for support during this difficult time. Whether you need more information on medications, in-home medical equipment, volunteer programs, bereavement support, or spiritual guidance, the Medical Social Worker, Chaplains, and nurses, as well as other members, can assist you. They’re available around the clock to provide invaluable support to help you become a better caregiver. 

When you have all the information you need, you can make informed decisions about your loved one’s care and feel confident in your role as a caregiver. 

Northern Illinois Hospice is here to provide compassionate end-of-life care

At Northern Illinois Hospice, we understand that every hospice journey is unique, which is why each care plan is tailored to the person’s goals and wishes. We take that information and create a team of individuals that can provide compassionate end-of-life care for your loved one. 

As the first hospice provider in the region, Northern Illinois Hospice has been helping people transition to hospice care for more than 45 years. Our team provides compassionate end-of-life care to individuals with life-limiting illnesses.

We honor patients and their wishes by providing specialized care that treats the person, not the disease. We offer a wide range of palliative and hospice care to improve your loved one’s quality of life in their final months.

Our experienced team of healthcare professionals, social workers, and volunteers is here to ensure your loved one’s comfort and support.

Get even more support with The Reading Room

Because hospice care offers so many services and benefits to patients, families, and providers, it can sometimes feel overwhelming to navigate. That’s why we created The Reading Room.

The Reading Room is a special place where people can learn and grow in their understanding of hospice and palliative care, anytime and anywhere. It’s like having a whole library in the palm of your hand or with a click of your mouse. With dozens of articles and helpful how-to videos in both English and Spanish, The Reading Room can serve as a helpful guide. 

To learn more about our palliative or hospice services or how we can help you navigate end-of-life care for your loved ones, call us today at (815) 398-0500.